Thursday Health Thought: Resources for Chronicittles | Caravan Sonnet

Thursday Health Thought: Resources for Chronicittles

February 28, 2013

{Disclaimer: The information included on this site is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan. Reading the information on this website does not create a physician-patient relationship.}

Chronicittles (def):health tips, support, and encouragment for those who are in their twenties and thirties and struggle with chronic illness

As I mentioned last week I wanted to pass on some W.O.N.D.E.R.F.U.L. resources for "chronicittles" (those who have chronic illnesses in their twenties and thirties). Being diagnosed with a chronic illness at any age can be extremely difficult but for those in their twenties and thirties when life feels like it is just beginning it can bring with it a HOST of different emotions, feelings, and different issues. I have found my faith in God is what helps me through each day. I am also thankful for the resources that others have suggested to me. It is always encouraging to know that you are not alone. Listed below is in no way an exhaustive list but I hope that you will find the following a helpful! If you have any resources that you could share~ please do in the comment section!

1. "Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties" by Laurie Edwards  - This book is wonderful. It is a must read for anyone who has a chronic illness in their twenties and thirties. It is packed full of encouragement and great resources. On the back cover it states: "Reading Life Disrupted is like having a best friend and mentor who truly knows what you're going through". Well stated.

2. "Being Sick Well" by Jeffrey H. Boyd. - This book has been such an encouragement and while it is not specifically written for those in their twenties and thirties it will encourage and challenge anyone struggling with chronic illness to find joy despite having a chronic illness.

3. "Crazy Sexy Cancer Tips" by Kris Carr. - She was in her late twenties when she was diagnosed with cancer. Her tips are wonderful no matter the illness.

4. "God on Mute" by Peter Grieg. - This book is wonderful especially for those who are struggling with the the silence of God with chronic illness. Grieg shares his wife's story of struggling with severe epilepsy.

5. "Coping with Chronic Illness" by H. Norman Wright & Lynn Ellis. While this book was not my favorite I did find that it had several different pages with very useful information for chronicittles {especially pages 84-86, chapter 6 ("dealing with loss" which is especially helpful for chronicittles), chapters 10 &11 ("rebuliding your life")}

1. Chronic Babe - an online community for younger women with chronic illness

2. Rest Ministries- a christian organization that works to encourage those with Chronic Illness (at any age). One of the things that I have found incredibly encouraging about this website is that there are opportunities for a number of different including on-line support groups, articles, and daily devotions that can be sent to your email. The founder, Lisa Copen, struggles with her own health issues and gets it.

2. Sick Girl Speaks - Tiffany Christenson who has cystic fibrosis and has had two double-lung transplants has a wonderful website and has written several books.  

3. Chronic Illness Coach - is a resource for those who have are balancing work while having a chronic illness. 

4. Laurie Edwards - this website is filled with great information and hosts her personal blog

5. Kris Carr - has a website with a ton of different information!

6. Invisible Illness Week - hosts a yearly invisible illness week

Helpful Articles:
1. Impact of Chronic Illness on College Planning - this article will be especially helpful for those who are balancing education and chronic illness.

3. Too Young for Chronic Illness - This is a wonderful interview with Laurie Edwards

I am so excited to share that over the next several months I have lots of EXCEPTIONAL women and men who are going to be sharing their own stories as chronicittles. They have inspired and encouraged me with their different stories and I am confident that they will do the same thing for you. Each story is unique and different with a variety of different health issues and challenges that hopefully will encourage you or a family member or friend. In the month of March I am excited to share with you two dear friends ~ one who suffers with diabetes and one with a heart condition. I am confident that you will be challenged by both. Next week I also look forward to sharing with you a little bit about my own story. If you are interested in sharing your health story please contact me (