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5 of the Best Ways to Help a Loved One with Epilepsy

July 20, 2021

 

Image Courtesy of Pixabay

Around 65 million people globally are epileptic. And although epilepsy affects so many, it is a strange and mysterious illness that we still don't fully understand. Some theologists and doctors alike attribute the disease to the misinterpretation of demonic possession going back centuries. Along with comorbidities such as depression and paranoid schizophrenia, epileptic episodes can be terrifying to those who have never seen them. As they don't understand it, they can apply misguided religious ideals to a purely medical issue.

This is because the condition has a wide range of side effects. When someone experiences a seizure, symptoms range from a loss of awareness to a loss of consciousness. Some of the worst include complete loss of consciousness combined with sudden jerking, grotesque facial and body movements, and incontinence. In addition, following a seizure, an epileptic patient can experience depression, extreme fatigue, and emotional imbalance. 

Epilepsy and its symptoms and effects are both embarrassing for the patient and frightening to witness. But some of the most reassuring things you can do are:

  • Be Aware of Further Issues

  • Stay Calm and Assist

  • Give Them Time to Recover

  • Record Episodes and Keep Track

  • Explain the Situation to Others

There are numerous issues associated with epilepsy, so the condition itself is exacerbated. Should a family member or friend experience a seizure, you should stay calm and render appropriate assistance. Following an episode, a patient can take anywhere from 10 minutes to 7 days to recover. Recording seizures on your phone and tracking the details can help with controlling them or with diagnosis. Attacks are not exactly pleasant to witness and can be misinterpreted as something else, so explaining the situation to family, friends, and bystanders helps with their understanding of what's happening. 

Be Aware of Further Issues

Like other significant medical problems, it isn't uncommon for epilepsy to be associated with or accompanied by further medical issues. The comorbidities and hearing loss thereof is a prime example; issues such as Alzheimer's and diabetes can accompany a loss of hearing. In terms of epilepsy, comorbidities can include severe depression, emotional instability, anxiety, paranoia, and sensory hallucinations.

How these issues present themselves varies from patient to patient. For example, it may be the case that epilepsy coexists alongside long-term depressive disorders such as bipolar. Or depression may surface before or following a seizure. Such cases can be thought of as indicators that an episode is about to occur, similar to how some epileptics describe the feeling of an aura. But unlike auras, other mental issues can present themselves days before, rather than minutes, and last for days after.

Stay Calm and Assist

Witnessing a seizure for the first time can be extraordinarily intense and frightening. Grand mal seizures can cause violent and seemingly impossible body and facial contortions, as highlighted in the excellent movie The Exorcism of Emily Rose. The movie is more a commentary on epilepsy and its treatment rather than horror. While it isn't fair to compare epilepsy to demonic possession, if there is such a thing, the point is that there is nothing to be afraid of as long as you stay calm and render assistance as best you can.

One of the most common mistakes people make is placing something to bite inside an epileptic's mouth during a seizure. Under no circumstances should you do this. It could injure both yourself and the patient. This was done to stop someone from swallowing their tongue, which many people don't realize is impossible. Instead, try to roll a patient onto their side and support their head if you are able. Then, just allow the seizure to finish. They can last between 20 seconds to a couple of minutes.  

If the seizure doesn't stop after 5 minutes, then call an ambulance. Paramedics use benzodiazepines to halt prolonged attacks.

Give Them Time to Recover

Post-seizure symptoms vary from person to person, but there are some common effects. These effects include extreme tiredness, emotions, uncontrollable laughing, anger, body pains, a bitten tongue, and depression or anxiety. Following a particularly prolonged seizure, there may also be some loss of awareness and temporary memory loss. In almost all cases, the patient will be fine after 20 minutes of rest, but a grand mal seizure can cause symptoms that last for a week.

This is one of the reasons why it can be difficult for some epileptics to keep a job for an extended period. Many employers simply don't care that you have an extremely debilitating illness. In addition, in most countries, epilepsy isn't classed as a disability. Therefore, the rights that apply to someone with self-induced CHD from smoking for 30 years (or even those with drug addictions in some nations) don't apply to someone born with epilepsy. 

Record Episodes and Keep Track

The case for keeping track of and/or recording episodes is a contended one. Some people don't believe that it makes a difference concerning seizures. However, keeping track of attacks and recording them can help when it comes to diagnosis, possible treatments, and identifying triggers. There are many forms of epilepsy, such as focal, absence, and grand mal. All have their own symptoms, and some epileptics experience multiple types at the same time.

Because of the many symptoms associated with seizures, they can be hard to describe, and the patient may not recall most of the experience. However, you can help a loved one with their illness by recording on your phone. This is of great help to doctors and medical staff involved in epilepsy care who can then see what is happening. Some people also record the type, time of day, duration, and what they were doing when a seizure occurred. This can help identify patterns to aid with reducing attacks.

Explain the Situation to Others

As mentioned, witnessing a seizure can be distressing for anyone watching, especially children. But once people know what is happening, they are usually helpful and will assist where they can. You should also ask people not to help. This sounds counterintuitive, but someone trying to help might be injured by a sudden spasm. They could also harm the patient by assisting in the wrong way - like putting a bit in their mouth.

Unfortunately, people are also quick to judge, and epilepsy can be perceived as another issue. One common mistake people make is assuming that an epileptic is under the influence of drugs or alcohol. This is obviously a concern where law enforcement is concerned. But services such as taxis and buses or public spaces have been known to refuse service to someone experiencing a seizure. Always explain what is happening and never be afraid to call medical help - paramedics will never criticize you for calling during an episode.

*contributed post*
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housing update for albany

July 19, 2021

caravan sonnet
Happy Monday friends! We are up early and driving down to Albany again today to look at additional houses and apartments for something to rent. As some of you know and I have shared on instagram we definitely would covet prayers as we have had a TON of things just fall through in a living situation for numerous reasons over the last several months. We are definitely down to the last minute and need this finalized immediately, so PLEASE join us in praying for blessings on our time and search today! 
Thank you!

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Kennicott // Kennicott, Alaska

July 16, 2021

Caravan Sonnet Blog
Happy Friday friends! I hope that you are having a lovely day! Today I am excited to continue recap my Alaskan Road Trip Adventures from 2019. As I have shared, I wanted to do this because I hope that it encourages you to consider taking a road trip of your own this summer to this beautiful part of the world!

Today I am so excited to share more about the town of Kennicott in Kennicott Alaska. If you have been following along with the blog for even a short amount of time than you know that it had been a dream of mine for a while to go over to the Kennicott/McCarthy area in the Wrangell-St. Elias National Park so I was so exited to experience the area. 

We arrived early Monday evening and had a chance to explore the town of Kennicott on Tuesday morning. We had planned a hike to the Root Glacier in the afternoon so after we ate breakfast we had plenty of time to explore the tiny town of Kennicott. For time reference sake for those who are planning a similar trip we had about an hour...and we really only needed about 30 minutes. 
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Caravan Sonnet Blog
Caravan Sonnet Blog
We walked down the hill from the lodge to the small visitors area that overlooked the Kennicott Glacier and also showed a map for those that might be interested in walking to (or taking the shuttle) McCarthy. Overlooking the glacier (I shared about it HERE) was beautiful and we definitely were swept up in the unique beauty that we were witnessing around us.
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Caravan Sonnet Blog
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Caravan Sonnet Blog
After spending a bit of time in this area we walked along the road, stopping in to the small gift shop.
Caravan Sonnet Blog
At the gift shop I saw this wooden box with the discussion about the times that mail is delivered and taken out. We learned that during the summer the mail is transported two times a week (Monday and Thursday) while during the winter (when there is only 7 people who live in the town) it is just sent out and delivered on Thursdays.
Caravan Sonnet Blog
Caravan Sonnet Blog
At the gift shop you can walk through the store to the porch that overlooks the town and we saw a different view of the Kennicott Glacier plus a bit of the town. We could also see in the distance the outline of some of the buildings of the Kennecott Mines. 
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(Curious about the different spellings of Kennicott and Kennecott? Read my post on this HERE!) We decided to make our way to this area and spent a bit of time there and then saw more on our way to Root Glacier.
Caravan Sonnet Blog
As you walk along the dirt road you see the old buildings of the mine (which you can tour if you would like) in the distance.
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Caravan Sonnet Blog
Caravan Sonnet Blog
Caravan Sonnet Blog
Caravan Sonnet Blog
Caravan Sonnet Blog
Kennecott has kept many of its original buildings (with some updates) and since 1998 the National Park Service has owned these buildings. The buildings and the land is significant as it remains to be the best example of early 20th century copper mining that exsits in the United States. 
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Caravan Sonnet Blog
Caravan Sonnet Blog
In 1978 the historic mining town of Kennecott was listed on the National Register of Historic Placies and was later designated as a National Historic Landmark in 1986. 
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As we walked along I looked back and snapped this picture. From this angle the buildings looked more brown then red and it felt like you had truly stepped back in time. You can book a tour to walk through the mine and the buildings and to learn more of the history. We opted not to do this and instead explored on our own. A few of the buildings were open for people to walk through even if you didn't have a tour and we spent a tiny bit of time walking through them.
Caravan Sonnet Blog
Caravan Sonnet Blog
The power plant was really incredible to look at. There was a fire in 1924 so it was rebuilt after that, but it really was so interesting to explore. 
Caravan Sonnet Blog
Caravan Sonnet Blog
After exploring the power plant we walked down the gravel "road" to the house area. While some of the houses still have people living in them (there are 7 people who live in Kennicott full year round and others who rent them for the summer months), there was one that was open to explore. It had been set up a bit like a museum and was just interesting to go through. Hearing the stories of the people that moved to Kennicott during the early part of the decade was fascinating to see. Those young families must have truly bonded together in a unique way being so far removed from civilization as we know it. 
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Please let me know if you have any questions about Kennicott. It was truly one of the most unique places to visit ever and a once-in-a-lifetime situation I know. I hope that everyone can see it once in your life because it truly is remarkable. 

Happy Friday friends! I hope that you have a wonderful weekend!

Want to step forward and plan your trip but not sure how? Check out all of the Alaska Road Trip posts from our trips in 2018 and 2019 which you can find them in the Alaska travel section on my blog by clicking HERE or you can click on the specific links below:

 // Alaska 4x4 Rentals Review// 
// A Trip To Remember: Our 9 Day Alaskan Road Trip Itinerary -2018//
//  Best Alaskan Books to Purchase for Your Road Trip //
// What to Pack for an Alaskan Summer Road Trip //
// Why You Should Dream About Visiting Alaska //
// 5 Reasons You Need to Take an Alaskan Road Trip//

Anchorage: // Hyatt Place Anchorage-Midtown Video // Beluga Point // 
// Hyatt Place Anchorage-Midtown// Room 209 Hyatt Place Anchorage-Midtown //
// Anchorage Travel Guide//

Chugach Mountains (Alaska 1-South Drive): // Seward Highway Drive (Turnagain Arm Drive)//
// Along the Matanuska River on Alaska 1-South// A Beautiful Lake Adventure Near Chickaloon//
// A Cloudy & Beautiful Drive on Alaska 1-South//

Chugach Mountains: // Eklutna Lake//


Cooper Landing (Kenai Peninsula): // Kenai Princess Wilderness Lodge Nature Hike// 
// Kenai Princess Wilderness Lodge //

Denali State Park Area: //Talkeetna Alaskan Lodge (Pursuit Collection)// Denali Highway Video// 
// One Last Adventure on the Denali Highway// The Denali Highway: Part Two //
// The Denali Highway: Part One// 
//The Drive to Cantwell// Mt. McKinley Princess Wilderness Lodge //

Girdwood:  // Winner Creek Trail Video// Winner Creek Trail //


Hatcher Pass Area: // Hatcher Pass Video// Hatcher Pass // Little Susitna River //

Homer (Kenai Peninsula) Area: // Homer Video// Homer Spit// Homer Lighthouse// Bishop's Beach//
// A Brief History of Homer //

Kennicott/McCarthy Area: //Root Glacier Hike //Kennicott // Kennicott Glacier // 
// Kennecott vs. Kennicott Spelling // The McCarthy Highway // 
// An Unfortunate Review of the Kennicott Glacier Lodge //

Seward: //Holgate Glacier// Kenai Fjords Whale Watching Tour//
//A Beautiful Morning Walk in Seward// An Evening Walk at Seward Windsong Lodge// 
//Resurrection Roadhouse Restaurant at Seward Windsong Lodge//
//Seward Windsong Lodge// Room 408 at Seward Windsong Lodge//

Seward Highway Area: //Beluga Point// Scenic Seward Highway Drive (Turnagain Arm Drive)//

Talkeetna: //Talkeetna Alaskan Lodge (Pursuit Collection)//

Thompson Pass Area: // Thompson Pass Area Video 
// Worthington Glacier Hike//
//Worthington Glacier//
// Among the Alaskan Fireweed on A4-S: A Beautiful Symbol of Hope in the Hard Seasons of Life //
// A Brief History of & Drive on Alaska 4-South of the Richardson Highway//Klutina River//
// The Beginning Drive to Thompson Pass// 

Whittier: //3 Things to See and Do in Whittier Port on Your Alaskan Cruise // 
//Whittier YouTube Video// The Town of Whittier // 
//Whittier Tunnel (Anton Anderson Memorial Tunnel) //

Wrangell-St. Elias Park Area:
 //The McCarthy Highway // Copper River Princess Lodge //
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author for the hopeful and adventurous heart // cozy-luxury haven living peacefully beckoning, prompted by love and full of beauty in the everyday

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what zeeland taught my hopeful heart to notice
  There are places that ask nothing of you but presence. Zeeland is one of them. Photo by BLACK IBEX: https://www.pexels.com/photo/empty-bea...

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